Results of a pilot study at the Department of Ophthalmology at Mainz University Medical Center to establish a nationwide registry for childhood glaucoma in Germany
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Abstract
The subject matter of this dissertation is part of a prospective monocentric clinical pilot study conducted at the Department of Ophthalmology at the University Medical Center Mainz, which serves as a precursor to a future national registry for childhood glaucoma in Germany. The idea behind establishing a nationwide childhood glaucoma registry is to collect, for the first
time, clinical and epidemiological data about children with glaucoma throughout Germany and gain increased insights into diagnosis and treatment. This is coupled with the aim of improving the quality of life for affected individuals in the future. This dissertation aims to advance the
pilot project with its acquired insights. In the literature review, various aspects of childhood glaucoma and registry formation are examined and compiled. The materials and methods section contains a description of the study materials and the procedures used for carrying out the pilot study. The presentation of the obtained results was conducted using descriptive
statistics and qualitative methods, such as reporting observations. The partial analysis of the pilot study includes categorizing and evaluating the achieved results and formulating suggestions for improvement and future perspectives.