Gutenberg Open Science: A mixed-methods investigation of medical follow-up in long-term childhood cancer survivors : what are the reasons for non-attendance?

Please use this identifier to cite or link to this item: http://doi.org/10.25358/openscience-7019

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DC Field	Value	Language
dc.contributor.author	Ernst, Mareike	-
dc.contributor.author	Brähler, Elmar	-
dc.contributor.author	Faber, Jörg	-
dc.contributor.author	Wild, Philipp S.	-
dc.contributor.author	Merzenich, Hiltrud	-
dc.contributor.author	Beutel, Manfred E.	-
dc.date.accessioned	2022-12-20T11:11:19Z	-
dc.date.available	2022-12-20T11:11:19Z	-
dc.date.issued	2022	-
dc.identifier.uri	https://openscience.ub.uni-mainz.de/handle/20.500.12030/7033	-
dc.description.abstract	As long-term childhood cancer survivors (CCS) are at risk for late effects, ongoing medical care is crucial to detect and treat physical illnesses as early as possible. However, previous research from around the world has shown that many adult survivors did not participate in long-term medical follow-up. This study aimed to provide insight into German survivors’ care situation, with a particular focus on barriers to follow-up care. We investigated a sample of adult CCS (N = 633) (age M = 34.92; SD = 5.70 years) drawn from the German Childhood Cancer Registry’s oldest cohort (> 25 years after diagnosis). Our analyses included data from a standardized medical examination, a self-report questionnaire, and in-depth interviews with a subsample (n = 43). Half of the participants (n = 314, 49.6%) reported participating in some kind of medical follow-up. In a logistic regression analysis, attendance of medical follow-up care was associated with higher age. Reasons for non-attendance were assigned to four categories: lack of information about medical follow-up and/or its purpose (n = 178), termination by the health care provider (n = 53), structural barriers (n = 21), and emotional-motivational aspects (n = 17). The interviews contributed to a better understanding of how these reported barriers played out in the care of individual survivors. Further, they revealed that some survivors currently in medical follow-up had had periods without follow-up care in the past—which were also in many cases related to a lack of information, both on the part of health care providers and CCS themselves. The results indicated that a large proportion of long-term CCS do not receive the recommended follow-up care. Further, there is a great need for more information regarding the aims of long-term medical follow-up and available offers. This is an important prerequisite for CCS to make informed decisions.	en_GB
dc.description.sponsorship	Gefördert durch die Deutsche Forschungsgemeinschaft (DFG) - Projektnummer 491381577	de
dc.language.iso	eng	de
dc.rights	CC BY	*
dc.rights.uri	https://creativecommons.org/licenses/by/4.0/	*
dc.subject.ddc	150 Psychologie	de_DE
dc.subject.ddc	150 Psychology	en_GB
dc.subject.ddc	610 Medizin	de_DE
dc.subject.ddc	610 Medical sciences	en_GB
dc.title	A mixed-methods investigation of medical follow-up in long-term childhood cancer survivors : what are the reasons for non-attendance?	en_GB
dc.type	Zeitschriftenaufsatz	de
dc.identifier.doi	http://doi.org/10.25358/openscience-7019	-
jgu.type.contenttype	Scientific article	de
jgu.type.dinitype	article	en_GB
jgu.type.version	Published version	de
jgu.type.resource	Text	de
jgu.organisation.department	FB 04 Medizin	de
jgu.organisation.number	2700	-
jgu.organisation.name	Johannes Gutenberg-Universität Mainz	-
jgu.rights.accessrights	openAccess	-
jgu.journal.title	Frontiers in psychology	de
jgu.journal.volume	13	de
jgu.pages.alternative	846671	de
jgu.publisher.year	2022	-
jgu.publisher.name	Frontiers Research Foundation	de
jgu.publisher.place	Lausanne	de
jgu.publisher.uri	https://doi.org/10.3389/fpsyg.2022.846671	de
jgu.publisher.issn	1664-1078	de
jgu.organisation.place	Mainz	-
jgu.subject.ddccode	150	de
jgu.subject.ddccode	610	de
jgu.publisher.doi	10.3389/fpsyg.2022.846671	de
jgu.organisation.ror	https://ror.org/023b0x485	-
jgu.subject.dfg	Multidisciplinary	de
Appears in collections:	DFG-491381577-G

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