Versorgungssituation des Systemischen Lupus Erythematodes in Rheinland-Pfalz und dem Saarland
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Zeitschrift für Rheumatologie, 83, Springer, Heidelberg, 2024, https://doi.org/10.1007/s00393-024-01491-1
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Abstract
Hintergrund:
Der systemische Lupus erythematodes (SLE) ist eine klinisch heterogen verlaufende Autoimmunerkrankung, die mit hohem Leid für die Betroffenen sowie hohen sozioökonomischen Kosten verbunden ist. Eine frühe Diagnosestellung und eine adäquate medizinische Versorgung sind essenziell für einen milden Krankheitsverlauf. Es fehlen jedoch aktuelle Zahlen und Daten über die Versorgungssituation der Erkrankten in der Fläche.
Methodik:
Es wurden insgesamt 1546 Hausärzte, Rheumatologen, Neurologen, Nephrologen und Dermatologen in Rheinland-Pfalz und dem Saarland per Fax oder Mail mithilfe eines Fragebogens bezüglich Epidemiologie, Symptomatik, Therapie und Therapieerfolg befragt. Zusätzlich gab es die Möglichkeit, Verbesserungsvorschläge zu unterbreiten.
Ergebnisse
Fünf von sechs der rückgemeldeten 635 SLE-Patienten sind weiblich. Die häufigsten Hauptsymptome waren Arthralgien, Fatigue, Myalgien und Hautveränderungen. Von den Patienten erhielten 68 % Antimalariamittel (AMM), während 46 % mit Glukokortikoide
Background: Systemic lupus erythematosus (SLE) is a clinically heterogeneous autoimmune disease that is associated with great suffering for those affected, as well as high socioeconomic costs. Early diagnosis and adequate medical care are essential for a mild course of the disease. However, there is a lack of current figures and data on the care situation of patients in the area. Methodology: A total of 1546 general practitioners, rheumatologists, neurologists, nephrologists and dermatologists in Rhineland-Palatinate and Saarland were interviewed by fax or mail using a questionnaire regarding epidemiology, symptoms, therapy and therapy success. In addition, there was the possibility of making suggestions for improvement. Results: Five out of six of the 635 reported SLE patients were female. The most common main symptoms were arthralgia, fatigue, myalgia, and skin changes. Of the patients, 68% received antimalarials (AMs), whereas 46% were treated with glucocorticoids (GCs) and 50% with an immunosuppressant (I
Background: Systemic lupus erythematosus (SLE) is a clinically heterogeneous autoimmune disease that is associated with great suffering for those affected, as well as high socioeconomic costs. Early diagnosis and adequate medical care are essential for a mild course of the disease. However, there is a lack of current figures and data on the care situation of patients in the area. Methodology: A total of 1546 general practitioners, rheumatologists, neurologists, nephrologists and dermatologists in Rhineland-Palatinate and Saarland were interviewed by fax or mail using a questionnaire regarding epidemiology, symptoms, therapy and therapy success. In addition, there was the possibility of making suggestions for improvement. Results: Five out of six of the 635 reported SLE patients were female. The most common main symptoms were arthralgia, fatigue, myalgia, and skin changes. Of the patients, 68% received antimalarials (AMs), whereas 46% were treated with glucocorticoids (GCs) and 50% with an immunosuppressant (I