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Authors: Schultheis, Michael
Staubach-Renz, Petra
Grabbe, Stephan
Hennig, Katharina
Khoury, Fareed
Nikolakis, Georgios
Kirschner, Uwe
Title: Can hidradenitis suppurativa patients classify their lesions by means of a digital lesion identification scheme?
Online publication date: 9-Feb-2023
Year of first publication: 2023
Language: english
Abstract: Background and objectives Hidradenitis suppurativa (HS) differs widely with respect to its clinical presentation. Literature imposes different phenotypes potentially implying different treatment modalities. The aim of this study is to develop a validated scheme that enables HS patients to identify their own lesion types. Patients and Methods The developed schemes for physicians and patients were implemented in a specific software. Upon patient consent, the physician used the software to document the lesions identified. Patients subsequently logged into the patient-version of the software from the convenience of their home and selected the lesions they identified on themselves. Afterwards the correlation between professionals and patients was tested. Results For seven lesion types, correlation coefficients were statistically significant. A large/strong correlation between patients and physicians was found for the draining fistulas (0.59) and double-ended comedones (0.50). For five other lesion types, correlation was medium/moderate, namely the inflammatory nodule (0.37), abscess (0.30), accordion like-/ bridged scar (0.45), epidermal cyst (0.33) and pilonidal sinus (0.39). Conclusions HS-patients demonstrate high willingness to share their experiences and data. Therefore, a self-assessment scheme, as the developed LISAI, can be a valuable tool to enrich patient surveys with the identification of lesion types, for instance as a basis for phenotyping.
DDC: 610 Medizin
610 Medical sciences
Institution: Johannes Gutenberg-Universität Mainz
Department: FB 04 Medizin
Place: Mainz
Version: Published version
Publication type: Zeitschriftenaufsatz
License: CC BY-NC-ND
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Journal: Journal der Deutschen Dermatologischen Gesellschaft
Pages or article number: 27
Publisher: Wiley-Blackwell
Publisher place: Berlin
Issue date: 2023
ISSN: 1610-0387
Publisher DOI: 10.1111/ddg.14926
Appears in collections:DFG-491381577-H

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