Gutenberg Open Science: Psychosocial care needs of melanoma survivors : are they being met?

Please use this identifier to cite or link to this item: http://doi.org/10.25358/openscience-7821

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DC Field	Value	Language
dc.contributor.author	Fischbeck, Sabine	-
dc.contributor.author	Imruck, Barbara H.	-
dc.contributor.author	Blettner, Maria	-
dc.contributor.author	Weyer, Veronika	-
dc.contributor.author	Binder, Harald	-
dc.contributor.author	Zeißig, Sylke	-
dc.contributor.author	Emrich, Katharina	-
dc.contributor.author	Friedrich-Mai, Peter	-
dc.contributor.author	Beutel, Manfred E.	-
dc.date.accessioned	2022-10-04T10:27:19Z	-
dc.date.available	2022-10-04T10:27:19Z	-
dc.date.issued	2015
dc.identifier.uri	https://openscience.ub.uni-mainz.de/handle/20.500.12030/7836	-
dc.description.abstract	Patients who have survived malignant melanoma for more than five years may lack the opportunity to talk about their burden. As a consequence their psychosocial care needs remain undetected and available supportive interventions may not be utilised. Therefore, the psychosocial burden of this patient group needs to be assessed using specific screening instruments. The aim of this study was to investigate the psychosocial burden of long-term melanoma survivors, their psychosocial care needs and the determinants of these needs. We wanted to find out if the use of professional support corresponds to the care needs defined by experts. Using the cancer registry of Rhineland-Palatinate, melanoma patients diagnosed at least 5 years before the survey were contacted by physicians. N = 689 former patients completed the Hornheide Questionnaire (short form HQ-S) to identify psychosocial support need (scale cut off ≥ 16 or item-based cut-off score) and the potential psychosocial determinants of these needs. Additionally, they were asked about their utilisation of the professional support system. More than one third (36%) of them was in need for professional psychosocial support. The highest burden scores concerned worry about tumour progression. Younger age (< 50), higher general fatigue, higher symptom burden, lower general health, negative social interactions and unfulfilled information needs were significant predictors of the need for psychosocial intervention. Related to the percentage of survivors identified as ‘in need’, the professional support system was underused. Further studies should investigate whether using the HQ-S to routinely identify burdened melanoma patients could lead to better fulfilment of their intervention needs, ultimately enhancing health-related quality of life.	en_GB
dc.description.sponsorship	DFG, Open Access-Publizieren Universität Mainz / Universitätsmedizin	de
dc.language.iso	eng	de
dc.rights	CC BY	*
dc.rights.uri	https://creativecommons.org/licenses/by/4.0/	*
dc.subject.ddc	610 Medizin	de_DE
dc.subject.ddc	610 Medical sciences	en_GB
dc.title	Psychosocial care needs of melanoma survivors : are they being met?	en_GB
dc.type	Zeitschriftenaufsatz	de
dc.identifier.doi	http://doi.org/10.25358/openscience-7821	-
jgu.type.dinitype	article	en_GB
jgu.type.version	Published version	de
jgu.type.resource	Text	de
jgu.organisation.department	FB 04 Medizin	de
jgu.organisation.number	2700	-
jgu.organisation.name	Johannes Gutenberg-Universität Mainz	-
jgu.rights.accessrights	openAccess	-
jgu.journal.title	PLoS one	de
jgu.journal.volume	10	de
jgu.journal.issue	8	de
jgu.pages.alternative	e0132754	de
jgu.publisher.year	2015	-
jgu.publisher.name	PLoS	de
jgu.publisher.place	Lawrence, Kan.	de
jgu.publisher.uri	http://dx.doi.org/10.1371/journal.pone.0132754	de
jgu.publisher.issn	1932-6203	de
jgu.organisation.place	Mainz	-
jgu.subject.ddccode	610	de
opus.date.modified	2019-01-04T08:12:39Z
opus.subject.dfgcode	00-000
opus.organisation.string	FB 04: Medizin: Institut für Med. Biometrie, Epidemologie und Informatik	de_DE
opus.organisation.string	FB 04: Medizin: Klinik und Poliklinik für Psychosomatische Medizin und Psychotherapie	de_DE
opus.identifier.opusid	51990
opus.institute.number	0424
opus.institute.number	0434
opus.metadataonly	false
opus.type.contenttype	Keine	de_DE
opus.type.contenttype	None	en_EN
opus.affiliated	Fischbeck, Sabine
opus.affiliated	Blettner, Maria
opus.affiliated	Binder, Harald
opus.affiliated	Zeißig, Sylke
opus.affiliated	Emrich, Katharina
opus.affiliated	Beutel, Manfred E.
jgu.publisher.doi	10.1371/journal.pone.0132754	de
jgu.organisation.ror	https://ror.org/023b0x485	-
Appears in collections:	DFG-OA-Publizieren (2012 - 2017)

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