Authors:	Vogt, Annika Stiel, Stephanie Heckel, Maria Goebel, Swantje Mai, Sandra Stephanie Seifert, Andreas Gerlach, Christina Ostgathe, Christoph Weber, Martin
Title:	Assessment of the quality of end-of-life care : translation and validation of the German version of the “Care of the Dying Evaluation” (CODE-GER) : a questionnaire for bereaved relatives
Online publication date:	23-Apr-2021
Year of first publication:	2020
Language:	english
Abstract:	BACKGROUND International studies indicate deficits in end-of-life care that can lead to distress for patients and their next-of-kin. The aim of the study was to translate and validate the “Care of the Dying Evaluation” (CODE) into German (CODE-GER). METHODS Translation according to EORTC (European Organisation for Research and Treatment of Cancer) guidelines was followed by data collection to evaluate psychometric properties of CODE-GER. Participants were next-of-kin of patients who had died an expected death in two hospitals. They were invited to participate at least eight, but not later than 16 weeks after the patient’s death. To calculate construct validity, the Palliative care Outcome Scale (POS) was assessed. Difficulty and perceived strain of answering the questionnaire were assessed by a numeric scale (0–10). RESULTS Out of 1137 next-of-kin eligible, 317 completed the questionnaire (response rate: 27.9%). Data from 237 main sample participants, 38 interraters and 55 next-of-kin who participated for repeated measurement were analysed. Overall internal consistency, α = 0.86, interrater reliability, ICC (1) = 0.79, and retest-reliability, ICC (1, 2) = 0.85, were good. Convergent validity between POS and CODE-GER, r = −.46, was satisfactory. A principal component analysis with varimax rotation showed a 7-factor solution. Difficulty, M = 2.2; SD ± 2.4, and perceived strain, M = 4.1; SD ± 3.0, of completing the questionnaire were rather low. CONCLUSION The results from the present study confirm CODE-GER as a reliable and valid instrument to assess the quality of care of the dying person. More over our study adds value to the original questionnaire by proposing a deepened analysis of obtained data. The development of seven subscales increases its potential for further surveys and research.
DDC:	610 Medizin 610 Medical sciences
Institution:	Johannes Gutenberg-Universität Mainz
Department:	FB 04 Medizin
Place:	Mainz
ROR:	https://ror.org/023b0x485
DOI:	http://doi.org/10.25358/openscience-5765
Version:	Published version
Publication type:	Zeitschriftenaufsatz
License:	CC BY
Information on rights of use:	https://creativecommons.org/licenses/by/4.0/
Journal:	Health and quality of life outcomes 18
Pages or article number:	311
Publisher:	BioMed Central
Publisher place:	London
Issue date:	2020
ISSN:	1477-7525
Publisher URL:	https://doi.org/10.1186/s12955-020-01473-2
Publisher DOI:	10.1186/s12955-020-01473-2
Appears in collections:	JGU-Publikationen